If anyone’s suppressing Burzynski’s research, it’s Burzynski. The only motivations I can think of are greed and delusion because he’s not doing what an honest, altruistic scientist would do.
An honest scientist wouldn’t have any reason to delay publication of positive results for decades. If he got negative results, he would have moved onto more fruitful research long ago. If he suspected there was some flaw in the study, he would turn it over to peer review so they could engage in constructive criticism and he could start over and avoid those mistakes. Only a delusional scientist would keep testing after negative results, use cherry-picked anecdotes to falsely bolster his confidence and recruit test subjects, and avoid scientific scrutiny.
An honest scientist wouldn’t charge patients ridiculous amounts to participate, because that would make the selection non-random, biasing the results and negating the study’s value. Patients who invest a lot of money into a treatment are also emotionally invested in interpreting their situation in a positive light. Statistical analysis is how we remove our rose-colored glasses.
An altruistic scientist would instead pay for the study by asking for research grants and donations. He wouldn’t give out false promises of results, only that his treatment be given a chance to live up to his hopes. A con artist, however, would seek to make a profit by overcharging desperate patients for drugs that can be bought more cheaply. He would encourage people to spread cherry-picked testimonials to convince laypeople who don’t understand science. He wouldn’t publish his statistics and research methodology because that would allow scientists to discover the scam.
An honest scientist wouldn’t take a long time to publish a study unless what he’s studying really and truly takes decades to gather the data and make conclusions from them. In the case of a long term cancer treatment study, he’d at least publish preliminary results of what happens in the first few years and then continue following the patients for longer increments. That way, if the initial results are promising, other scientists can try to replicate them, and not have to wait for decades.
An altruistic scientist wouldn’t keep his research to himself. Science today depends on a culture of altruism. Scientists are expected to share information relatively freely. Science thrives with transparency and cooperation because new research depends on the reliability of existing knowledge. The era of the lone genius toiling in isolation is long dead because we’ve got good reason to think we’ve figured out all the “obvious” stuff. New research is about the fine details and nuances or the rare and exotic. A scientist who wants to find something new needs to know what others have already found out. Keeping your research secret from the world is downright Randian, because it depends on authoritarianism and the blind trust of consumers, instead of informed consent.
If Burzynski is allowed to continue his scam, that sets a precedent for big pharmaceutical companies to do the same.